News Item

SHCA Summary of German Rare Disease Plan


The Specialised Healthcare Alliance has produced a short summary of Germany’s National Action Plan for People with Rare Diseases.

The Action Plan was developed by a cross-Ministry committee, which will now oversee its implementation. Of particular interest are the Plan’s recommendations on designating expert centres within a three-tier system. Each recommendation is also accompanied by clear actions for named organisations.

The German plan can be read in full here.

The SHCA is pleased to be part of the UK Rare Disease Forum and looks forward to working with the four nations of the UK on the implementation of the UK Strategy for Rare Diseases.

SHCA Summary of German Rare Disease Plan – 201403