The Specialised Healthcare Alliance is a coalition of patient-related groups and corporate supporters with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care. These services cover a wide range of conditions, many of which could affect any one of us at some point in our lives.
Established in 2003, the Alliance has a broad and growing membership of over 120 patient-related organisations, with 16 corporate supporters. Members represent the broad range of specialised services from mental and paediatric health to genetic and neurological conditions.
The Alliance captures the views of members and keeps them informed through a combination of quarterly meetings and email. The organisation’s governance can be found here
The Alliance focuses exclusively on overarching policies and structures relating to specialised care and does not address individual therapeutic issues.
If you have information about provision of specialised services that you would like to bring to our attention or if you would like to know more about the SHCA, please contact us at: firstname.lastname@example.org