Members and supporters

Chair: Lord Sharkey

Vice Chair: Baroness Wheeler

Patient group members

Corporate supporters

  • Alexion
  • Amicus Therapeutics
  • BioMarin
  • CSL Behring
  • Janssen
  • Gilead
  • Novartis
  • Silence Therapeutics
  • Takeda
  • Vertex

Corporate supporters are contributing £14,500 each towards the costs of the Alliance for 2022.

The secretariat of the Alliance is provided by Incisive Health.

If you have information about provision of specialised services that you would like to bring to our attention or if you would like to know more about the SHCA, please contact us at: