Members

Chair : Baroness Jolly

Patient groups

AKU Society 
AMEND (the Association for Multiple Endocrine Neoplasia Disorders
Anthony Nolan
Arthritis and Musculoskeletal Alliance (ARMA)
Arthritis Care
ASBAH (Association for Spina Bifida and Hydrocephalus)
BAPEN (British Association for Parenteral & Enteral Nutrition)
BEAT (Eating Disorders Association)
Behcet's Syndrome Society 
BLISS (premature baby charity) 
Bone Cancer Research Trust
Bowel Cancer UK
Breathtakers
British Liver Trust
British Lung Foundation
British Paediatric Rheumatology Group
British Pain Society
British Polio Fellowship
British Society for Rheumatology
Cancer of Unknown Primary
Child's Liver Disease Foundation
Children Living with Inherited Metabolic Disorders (CLIMB)
Children's Heart Federation
(The) Children's Trust
CLAPA (Cleft Lip and Palate Association)
CLIC Sargent
Contact a Family
Cystic Fibrosis Trust 
Ehlers Danlos Support Group
Epilepsy Action
For Dementia
GBSSG (Guillain-Barre Syndrome)
Grown Up Congenital Heart Patients’ Association
Haemophilia Society
Hepatitis B Foundation UK 
Hepatitis C Trust
Ichthyosis Support Group
International Brain Tumour Alliance
Kidney Alliance
Limbless Association
Lymphoma Association
Macmillan Cancer Support
Motor Neurone Disease Association
MS Society
MS Trust
Muscular Dystrophy Campaign
Myeloma UK
Myrovlytis Trust
National AIDS Trust
National Brain Injury Centre, St Andrew’s Healthcare
National Kidney Federation
National Rheumatoid Arthritis Society
National Voices
Neurofibromatosis Association
Neurological Alliance
Niemann-Pick Association
Niemann-Pick Research Foundation
Parkinson's UK
PINNT (Patient on Intravenous and Naso Gastric Nutrition Therapy)
Primary Immunodeficiency Association
Progressive Supranuclear Palsy Association
Pulmonary Hypertension Association
Rarer Cancers Foundation
Sarcoma Trust
Scleroderma Society
Sickle Cell Society
Sign (mental health and deafness)
Speakability
Specialist Orthopaedic Alliance
Spinal Injuries Association
Teenage Cancer Trust
Terrence Higgins Trust
Tuberous Sclerosis Association
Turner Syndrome Support Society
UK Thalassaemia Society

Corporate

Abbott Laboratories
Actelion
Baxter
Bayer
Genzyme 
Gilead
Novartis
Novo Nordisk
Pfizer
Shire

(Corporate members have contributed £11,000 each towards the costs of the Alliance for the year commencing December 2010 )

© Specialised Healthcare Alliance